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Bioethics
: what are the implications for disabled people
A DPI-Italy seminar - Reggio Calabria, October
This seminar
was wanted , organised and run by disabled people and parents of disabled people and its outcome satisfied everyone : from professor Giovanni
Incorvati, member of the Italian Bioethics Committee to the Cabinet, to the
last persons who , having heard
of the seminar, arrived the second day to register .
The seminar took place in the multifunctional room
of the Directional Centre of
Reggio Calabria, on 20th and 21st of October. More
than one hundred people from all over Italy participated. The work was divided in three phases : a plenary in the morning of the 20th , four workshops in the afternoon (one for every issue) and a round table discussion in the morning of the 21st . The meeting , moderated by the Councillor of Social Politics Mr
Giovanni Pensabene , was introduced
by the European Chairman of Disabled Peoples’ International (DPI)
Giampiero Griffo , who reported on ‘People with disability discuss about new
genetics’. Professor Francesco
Iuliano, assistant at the Division
of Haematology and Oncology of the Pugliese Hospital in Catanzaro,
illustrated , by means of slides, how the concept of ‘the right to be born’ depends on the culture.
Mac Intyre affirms that in the rich Western World: ‘to prevent the birth of a terribly defective child , and the emotional and
economical destruction of a family
abortion is the best choice to be made’, while infanticide of a female
foetus or a newborn baby girl is
perfectly legal in China. We might learn something from the African world ,
where a Sango proverb says ‘Zo we Zo’ , ‘a man is a man’.
Rita Barbuto, the Italian DPI chairman, said that
there is an urgent need to increase awareness amongst disabled people and their parents on issues related
to bioethics in order to make
them take up their corresponding
responsability.
Professor Salvatore Pietro Paolo Guglielmino, of the Microbiological,
Genetical and e Molecular
Sciences of the University
of Messina, showed how the human
genome is a common characteristic of mankind .
Professor Guglielmino ‘s report and the one of Mr Corrado Viafora of
the Lanza Foundation in Padova,
who talked about ‘the quality of prenatal diagnosis’ stimulated the reaction,of the head physician of the
department of Medical Genetics at the Riuniti Hospital in Reggio Calabria ,
Doctor Carmelo Laganą. He insisted on
the necessity of research to avoid and combat genetic diseases , he
showed his deep humanity and sufferance
every time he had to diagnose , often with a descrete margin of error
, genetic disorder in a foetus.
This discussion took
place in the afternoon workshop , where he was a participating observer .
The speakers of the workshops were members of the
Bioethic group of DPI Italy, the
participating observers were important professionals from the city of
Reggio.
A workgroup,
chaired by Emilia Napolitano with the collaboration of the Lawyer
Francesca Panuccio, elaborated
the proposals to modify the article 6 comma B) of the 194 Law ; Generoso di Benedetto with the
participation of Doctor Carmelo Laganą , related on the issue of the
participation of disabled people in choices regarding genetics.
Pasquale Ezio Loiacono coordinated ‘ the right to be born and the duty
to accept’, this discussion had
the precious contribution of Doctor Corrado Mammi, assistant at the Medical
Genetis Department of the Riuniti Hospital in Reggio Calabria. Giampiero
Griffo and the Lawyer Giuseppe
Chiofalo, head of the FACITE
Foundation, tried to
stimulate answers to the question : who decides for people with a serious
psychologial disability..
The second morning , Mr Edoardo Lamberti Castronuovo, led the round
table discussion, in which thel speakers from the different workshop reported
on each group work and on the
participation of the observers. Prof. Giovanni Incorvati, previously quoted , concluded the seminar admiring the organisation and the contents that came forward in the course of the seminar, he suggested to institutionalise and put forward the reflections and discussions on Bioethics every year in our city.
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IMPOSTAZIONE GRAFICA |
